‘My Chronic Career’ is a (often) weekly feature here at WorkLifeSpirit, featuring interviews with people who have chronic health problems. The interviews focussing on not just their medical experience, but also the impact of their health on their life and career.
Teresa from Norfolk in the UK has agreed to be interviewed. Thanks Teresa!
(Please come forward to be interviewed if you work and have a chronic health problem by contacting me)
Can you tell me a bit about your medical history?
I have been diagnosed with Crohn’s disease in May 2005. It was thought I had appendicitis , but had an operation and they saw the Crohn’s. I then had another operation two weeks later as the medication wasn’t working. I then got peritonitis and nearly died, and so they gave me an ileostomy for a few months which was reversed in November 2005.
I was then diagnosed with arthritis and fibromyalgia. I had two operations on my elbows. I then had issues with adhesions and have had 3 further operations to try and get them to settle, but they haven’t, and so even now I am being treated.
I am on Methotrexate for the arthritis, having tried MP3 and Mercaptopurine, which didn’t work. I was on steroids for a long time and put on a lot of weight which made me feel terrible and so took antidepressants.
My last operation was November 2010 there were adhesions again, but this time it made it worse rather than better, and now I am being treated and looked at with St.Marks Hospital where I have been referred to as they are more specialist than my local hospital. I am tired all the time, and I suffer with fatigue a lot and am on a lot of opiate pain killers.
And how about your working life? What career path have you taken?
Although I was off for a while, I have been a police officer for nearly 15 years, and am now on a back to work recovery programme and now working full time hours.
Did you know about your condition before you were diagnosed?
Nope, no clue at all.
How did you find out further information about your condition when you were diagnosed?
I looked on the internet as staff at the hospital
Finding information is different now with the internet, which sites do you find useful in terms of information / support and advice about your condition?
I find the National Association of Crohn’s and colitis to be helpful. I also have a couple of books on the disease, and also look on crohnszone.org for information as well as other friends who have the disease.
Thinking about working and having your condition – what do you find / have you found most difficult to manage / cope with in the world of work?
The fatigue is the biggest issue for me, and where the nearest toilet is!
What is your top tip for employers – what could they do to support people with your condition?
They need to be empathetic in relation to your working space, and also where the nearest facilities
What is your top tip for employers with your condition?
You are covered under the DDA and so if there is something that is troubling you then you do have the support of the disability discrimination act.
When you have a flare up of symptoms – what is your ‘coping mechanism’?
I am normally in bed early with a hot water bottle and my medication.
Do you think you have developed any personal skills or qualities as a result of having your condition?
I have developed more skills in finding the toilets, how to ask and explain in places when toilets aren’t public, to ask where they are.
What advice would you give people who have just been diagnosed with your condition?
I would suggest that you look at the DDA to see what your entitlements are, and also, find out where the facilities are at your place of work.
What advice would you give to the family and friends of someone who has just been diagnosed with your condition?
It is not that bad – there are going to be some bad days, and there are going to be some good days, some bad. Don’t wait around for the bad ones and make the most of the good ones.
Do you have a chronic health condition and a career? If so please come forward to be interviewed by contacting me!