The ‘My Chronic Career’ series has been hugely successful, showcasing a growing range of illnesses and experiences of people in work. I’ve expanded the questionnaire to include some new questions and now, adapted it for those in school or college.
Your experiences are important. There are other people, newly disgnosed, going through what you did, and feeling alone. These interviews aim to help their friends and their school /college to understand their illness. It helps everyone understand that it isn;t just one person being different or awkward – it is all of us, hidden away, out of sight, but painful, debilitating and embarrassing.
Please share, you may do it anonymously if you wish. Just contact me with your email address.
- Medical ‘history’ – just give as much info as you want to, I don’t mind if you don’t want to say much
- Outline of school /college ‘history’ – my aim is to show you can learn and play and have chronic health problems
- Did you know about your condition before you were diagnosed?
- How did you find out further information about your condition when you were diagnosed?
- Finding information is different now with the internet, which sites do you find useful in terms of information / support and advice about your conditions?
- Thinking about learning and having your condition – what do you find / have you found most difficult to manage / cope with while learning?
- What is your top tip for schools/colleges – what could they do to support people with your condition?
- What is your top tip for students with your condition?
- Thinking about friendships and having your condition – what do you find / have you found most difficult to manage / cope with?
- Thinking about having fun and having your condition – what do you find / have you found most difficult to manage / cope with?
- Thinking about your life, what do you do differently because of your health condition?
- When you have a flare up of symptoms – what is your ‘coping mechanism’?
- Do you think you have developed any personal skills or qualities as a result of having condition? (I for example have encyclopaedic knowledge of public toilet locations!)
- What advice would you give people who have just been diagnosed with your condition?
- What advice would you give to the family and friends of someone who has just been diagnosed with your condition?
And if there is a question that I have not asked which you would like to answer please add the question and the answer!